Advocacy: Misattributed Parentage Experiences

By Kara Rubinstein DeyerinThe advent of over-the-counter DNA testing has unlocked the closet where many family secrets were kept. While many learn one (or both) of the parents who raised them are not their genetic parent from a DNA test, sometimes people find out in other ways. A mother with a 104-degree temperature might let it slip that she had a son as a teenager. A family friend may tell someone mourning his dad, possibly at his funeral, that the suffered from infertility and had used a sperm donor. And sometimes having a child of their own prompts individuals to search for their biological family because they grew up with a vague idea of who their fathers were. Regardless of how one learns about misattributed parentage, the process of coping with such an experience is daunting and life-changing.

Right to Know is a non-profit founded on the principle that it’s a fundamental human right to know one’s genetic identity. We believe in inclusivity and embrace anyone who facing misattributed parentage. To that end we use the term misattributed parentage experience (MPE) to describe the phenomenon of coping with the fact that you did not grow up knowing your genetic parent. It’s a term used by mental health professionals for decades. We believe the word experience best describes the long-term effects we all have, as opposed to “event,” which is a one-time occurrence. The ramifications of an MPE last a lifetime to some degree.

An MPE belongs to one of three primary communities:

• Non-paternity event (NPE): those conceived from an extramarital affair, tryst, rape or assault, or other circumstance
• Assisted conception: those conceived from donor conception (DC), sperm donation, egg donation, embryo donation, or surrogacy; and
• Adoption: those whose adoption was hidden, orphans, individuals who’ve been in foster care or are who are late discovery adoptees (LDA), etc.

United, our communities have a stronger voice to effect change in society—to promote laws to protect our rights and encourage a better understanding of our experiences.

Right to Know focuses on three pillars to support people with an MPE: education, mental health, and legislation. Adoptees are trailblazers in many of these topics, but there’s still much work to be done. Many people with an MPE feel powerless, and through our work, we hope to empower them. Advocacy and helping others often facilitates healing.

People with an MPE often are not represented in lawmaking in the U.S. In fact, some of us clearly have no rights in the eyes of the law. Right to Know advocates for changes in laws to ensure people with MPEs are represented and our fundamental right to know our genetic identity is established legally. Our legal advocacy starts with your participation at a grassroots level. We are working to pass broad-based fertility fraud legislation with criminal penalties for all types of fertility fraud along with a civil cause of action allowing for both parents and offspring to bring a lawsuit. We also encourage an additional criminal penalty and a loss of licensure for doctors who use their own sperm to inseminate patients. We’ve teamed with legislators in Iowa, Michigan, New York, Oregon, and Washington to pass such legislation, with Nevada and Georgia soon to follow. We also partner with adoptee rights groups to see how we can help enact laws to ensure access to original birth certificates.

As part of RTK’s mental health initiative, we hold a monthly Community & Connection event on the first Sunday of the month at noon pacific time with a licensed therapist to discussed issues pertinent to MPEs. Past topics have included “A Look at Loss and Grief in MPEs,” “The Importance of Finding your Tribe and Feeling Supported,” and “Reaching Out to Bio-Family and Coping with the Response.” The next Community & Connection is “Identity and MPEs,” with Jodi Klugman-Rabb on Sunday, July 11. To register, send an email to RSVP@RightToKnow.us.

RTK also operates a hotline number, 323-TALK-MPE, to help people find resources to process their MPEs and pair them with someone who’s had a similar experience. To facilitate access to licensed professionals who have experience working with people with an MPE, we provide a directory so you can find a therapist to help you. We also work closely with DNAngels to help people find their genetic family.

Each month, usually on the third Sunday at noon Pacific time, RTK sponsors a webinar with world-class speakers on a topic related to MPEs. Past topics have included “Interacting with Narcissistic Moms” and “Family Members’ or Societal Perceptions of Ancestral DNA, Race, & Identity.” Find Information about upcoming webinars on the website.

RTK strives to educate the public on the complex intersection of genetic information, identity, and family dynamics through various media projects. In the fall it is launching an MPE Education website that will offer a variety of classes related to misattributed parentage.

Due to the newness of DNA testing and the surprising consequence of discovering misattributed parentage this way, there’s very little data available about MPEs, the rate of occurrence, demographics, and what we need to heal. Right to Know is excited to partner with Anita Foeman, PhD, and Bessie Lawton, PhD, from the DNA Discussion Project to gather information on MPEs through an online Institutional Review Board (IRB)-approved survey that aims to understand how MPEs affect individuals,  their family relationships (both preexisting and new), and their health and determine whether sufficient recourses and access to resources exist to cope with such a discovery. Your voice matters. Please participate in this groundbreaking research to ensure people with MPEs receive the help they need in the future. If you’d like to help or need more information about Right to Know’s initiatives, send an email to info@RightToKnow.us or find us online. Find us as well on Twitter and Instagram @righttoknowus.Deyerin is a non-practicing attorney and co-founder of Right to Know. She discovered three years ago that the man named on her birth certificate was not her biological father. With the click of a mouse, she went from being half black to half Jewish. She’s a mom, wife, writer, cook, knitter, and connoisseur of all things human. Follow her blog about her own journey, Unexpectedly Jewish. BEFORE YOU GO…

Look on our home page for more articles and essays about NPEs, adoptees, and genetic genealogy.

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