By Julie Ryan McGue
My twin sister and I were adopted during the Baby Scoop Era—post–World War II through the early 1970s—when closed adoption was the only option available to birth moms. Back then, adoption agencies matched babies with adoptive parents without any input from birth parents. Birth parents were promised anonymity, and future contact with their birth child was prohibited. This arrangement granted adoptive parents’ full autonomy to raise their adopted children as they deemed fit. But what all parties––birth parents, adoptive parents, adoption agencies, state lawmakers, and even civil liberties organizations––failed to do was provide for the long-term health and well-being of the adopted child.
For most of my life, I gave little thought to the fact my twin sister and I were adopted, something we seemed always to have known. Did I ponder the “big three” questions–– who are my birth parents, where are they, and why was I adopted––details about which most closed adoption adoptees admit to ruminating?
You bet I did.
But as much as I dwelled on the big three as a child, I did not consider how my lack of family medical history would affect me as an adult. I also didn’t understand that adoption meant I had two birth certificates: the OBR (original birth record) that was sealed with my closed adoption, and a redacted one that contained my adoptive parents’ details. It would be years before I comprehended the difference, and a lifetime until I appreciated the role my OBR played in my long-term health.
In our formative years, my adoptive parents would periodically bring up our adoption, quizzing my sister and me about whether we wanted to seek information. “No, we’re fine” was our standard reply. In truth, we were quick to dismiss our folks because we feared our curiosity would be misinterpreted as disloyalty. As an adult––and a parent myself––I wish that instead of asking how we felt about searching, that our folks would have taken a proactive role, advocating and securing information that might keep us healthy as we aged.
Besides those adoption chats with my parents, the only other time I was confronted with the realities of closed adoption were during routine doctor appointments. When asked to fill out my medical history, it was with deep shame that I admitted my status.
“I’m adopted. I don’t know anything.”
Even as I child, I was aware that if a doctor was asking about ailments, medical conditions, allergies, and sensitivities that ran in my bloodline, it wasn’t good to come up lacking. As I matured, I developed a burning anger around what closed adoption had denied me. I’d sit in a doctor’s waiting room, the stack of intake forms filling my lap, and scrawl in large letters across the entire form, “Adopted. N/A.”
As a young woman going into marriage, I was athletic and healthy. I was blessed with four normal pregnancies. Then at forty-eight, suddenly I wasn’t fine. “Six areas of concern” appeared on a routine mammogram. I was sent for a biopsy. My twin sister and I agreed it was time to claim what everyone else who isn’t adopted has the right to know: family medical history.
Click on image to read more.