NPEs

Don Anderson is the creator and host of Missing Pieces – NPE Life, one of the newest in the ever-increasing number of podcasts for NPEs (not parent expected.) Here, he shares his own NPE journey and talks about the importance of support, community, and storytelling.
Please tell us a little about yourself—what was your life like before your DNA surprise?

I was born in 1965 in a state where I’ve never lived—Iowa. Our home was across the river in Illinois, but our doctor and hospital were in Iowa. I have lived in Los Angeles for over half my life, since I was 27. My wife and I are small business owners in the entertainment industry, and we are almost empty nesters. Our youngest will be starting his senior year of college in the fall.

Can you summarize as much as you’re comfortable sharing of your personal story of when and how your DNA surprise came about?

Rumors have swirled around my family in regard to my older sister for decades. She and I grew up thinking we were full siblings. Every ten years or so, someone would get drunk and angry and bring up that she wasn’t my father’s child. Then a few years ago, she found out it was true. My parents finally came clean. My mom was already pregnant when she met my dad. He was fully aware and agreed to raise her as his own. Two years later I was born.

That sister spent over a year and a half looking for her bio father but to no avail. I asked her if she needed help. I also did a 23andMe test so we we’d have something to compare. But when I received my results, I discovered I had two half-sisters I never even knew existed. And in fact there weren’t just two, there were four. It turns out my mother had a one-night stand with their father in 1965. My new siblings welcomed me into their family with open arms. My bio dad drank himself to death in 2010, which in a way has actually made the bond with my new siblings stronger. In telling me stories about him so I could know who he was, they realized there was a lot of good about their father that they hadn’t been focusing on. And I fit in with them way more than I ever did my in original family.

How are you absorbing or exploring this knowledge?

As my wife says, I am “all NPE all the time.” I dove in deep and read a lot about NPEs. In the beginning, I devoured all the NPE podcasts and in doing so found a way to place my feelings into perspective. Someone once told me there are two types of people in this world, those who want to find out what’s behind that closed door and those who don’t. I especially think this is true in our NPE world. I am definitely one who wants—actually who needs—to know what’s behind that door. So eventually I started my own podcast.

I am the daughter of an adoptee. My mother, adopted from an orphanage when she was nine months old, was raised by parents who were loving, protective, and kind people. They raised my mother, a second adopted son, and their third and only biological child in a pastoral, rural setting where the kids rode horses to their one-room schoolhouse, kicked around in the surrounding woods and pasture, and lived a pretty idyllic existence. When my mother was 18 years old, she became pregnant with me. In a whirlwind of impulsive action, she married my birth certificate father, moved 2,000 miles away from home, and six months later gave birth to me. By the end of the year, she had packed me up, returned to her parents, and essentially disappeared the man I believed to be my father. Within the next twelve months, she remarried, gained two more young children, and, four years later, she and my stepfather had a daughter of their own. Amidst this chaos, I immediately began to identify myself as an outsider in the family: a sensitive and insecure child, an interloper among the three children of a man with whom I lived but hardly knew. In just a few years, I was both born of and made into a fatherless child.

The psychological construct known as object relations theory has shown us the cruciality of early childhood relationships to identity formation; that is, the origins of the self emerge from exchanges between the infant and others. Originally theorized by Austrian psychoanalyst Melanie Klein, the essential idea is that the infant’s bond to the parents shapes future relationships. What this means is that the mother as a physical object is invested with emotional energy from the child and the psycho-emotional impression of the mother, the internal object, comes to represent what the infant holds in her absence. If the object formation is disrupted early in life—as, I would argue, it is with virtually all adoptees and MPE/ NPE*—the failure to form these early relationships leads to problems later in the child’s life. Object relations theory also points out that situations in adult life are shaped by and mirror familial experiences during infancy.

My mother’s own adoption unquestionably caused for her a failure of identity formation leading to problems in late relationships. No doubt and with good reason, the sense of attachment and security that adoptees can, and likely do, feel carries over into adult relationships in all kinds of ways. The question is how this manifests itself. Adoption is not, by any means, the only way that this attachment disruption occurs. In fact, biological children may suffer the same disruption for a variety of reasons. The lack of attachment demonstrated by my mother in her adult relationships is not necessarily a reflection of her relationship with her adoptive parents, and not all adoptees develop in this same way. In our case, whatever the disruption my mother experienced as a child, whether the result of her late-infant adoption or some other barrier to her attachment, it severely affected her identity formation. This affected identity formation is where the intergenerational disruption of object formation can be seen most clearly.

The advent of over-the-counter DNA testing has unlocked the closet where many family secrets were kept. While many learn one (or both) of the parents who raised them are not their genetic parent from a DNA test, sometimes people find out in other ways. A mother with a 104-degree temperature might let it slip that she had a son as a teenager. A family friend may tell someone mourning his dad, possibly at his funeral, that the suffered from infertility and had used a sperm donor. And sometimes having a child of their own prompts individuals to search for their biological family because they grew up with a vague idea of who their fathers were. Regardless of how one learns about misattributed parentage, the process of coping with such an experience is daunting and life-changing.

Right to Know is a non-profit founded on the principle that it’s a fundamental human right to know one’s genetic identity. We believe in inclusivity and embrace anyone who facing misattributed parentage. To that end we use the term misattributed parentage experience (MPE) to describe the phenomenon of coping with the fact that you did not grow up knowing your genetic parent. It’s a term used by mental health professionals for decades. We believe the word experience best describes the long-term effects we all have, as opposed to “event,” which is a one-time occurrence. The ramifications of an MPE last a lifetime to some degree.

Did your upbringing influence your desire to be a social worker and if so, in what way?

I expected to become an elementary teacher growing up and had no idea what social work was until I was in my 20s. However, once I discovered social work, I knew that was what I needed to do. My upbringing was full of moments when I was a little social worker (counseling, advocating, and educating) but I did not know it until later. I was raised by a single father who worked hard to be sure we could pay the rent. All the moms in the neighborhood helped to raise me.

You were already a social worker and well into your doctoral studies when you decided to change the topic of your dissertation. Can you explain why you chose to align your scholarly interests with your NPE experience?

I was. That was quite the detour. I trust my gut with most everything I do. I could not find a way to study school social work (my profession) in a way that felt interesting to me. Once the NPE event happened, I brought it to my committee and they helped me determine that this was the path that fit better for me. Knowing there was little to no scholarly research at that time was a huge attraction to me as well. I agreed and was willing to do the extra work.

How, specifically, did you design your thesis—what were you looking to discover and how did you propose to accomplish that?

I knew I would do interviews for qualitative research. The idea of secrets kept was fascinating. Also, the impact that this discovery had on me and how off balance I felt at middle age got me interested in the impact on identity. The obvious path was discussing the impact on family of origin relationships—living or deceased and on the new family relationships—living or deceased.

You interviewed 51 people. Can you describe those interviews—how you selected subjects and what the interviews involved?

I was a part of one of the private NPE Facebook groups that agreed to work with me then backed out. Another Facebook group offered assistance then stalled. Finally, a woman who was starting another NPE Facebook group offered to assist. I was a member but did not participate for a long time. The process was an advertisement of the study and a link for those interested. The criteria for interviews included having discovered paternity through a direct-to-consumer DNA Ancestry test, living in North America, being over 18.

The first round of interviews was in the fall of 2019, the second round of interviews was in the fall of 2020. Unfortunately, the first round interviews were not used in the final study. It’s a complicated story but every one of those interviews mattered significantly to me and, interestingly, my findings were the same. The interviews were incredible. People were so willing to share their personal stories, so interested in helping other NPEs, and were so vulnerable and lovely. I feel incredibly lucky to have shared some time with all of these amazing individuals.

There are moments in our lives when the coincidences of being a human in an often-discordant world can feel overwhelming. In the early 2000s, as a young graduate student, I examined the (then-new) assisted reproductive technologies and ideas of relatedness: how material (flesh and blood) and information (genes) are used to help define different anthropological kin structures. In short, I somewhat blindly argued that the primacy of the biological part of relatedness could be surmounted through “different” ways of relating to define family. In hindsight, it was complacent to exclude the biological from my anthropological study of family. Little did I know that almost 15 years later my life would collide with these notions, head-on.

In late December 2020, I discovered through an at-home DNA test (gifted to me by one of my kin, nonetheless!) that I share no biological or genetic link with the man who, for 47 years, I believed to be my father. What’s more, the man with whom I do share half of my genetic material—and a remarkable physical likeness—has, for my entire life, been living with his family just miles away from my hometown and from the group of people I have always called my kin.

There’s an idea in anthropology that kinship is a mutuality of being: kin are intrinsic to one another’s identity and existence. The relational nature of kinship, traditionalists argue, lies in the fact that all those who are “related” are connected through the lineage of the mother and the father and, therefore, share traits and qualities that can be traced through these parental origins: biological, cultural, communal, genetic. Such ideas of relatedness, which were once seen as fundamental, came under scrutiny in the 2000s as deterministic. Cultural critics argued kinship as outmoded altogether, particularly in light of assisted reproductive technologies such as invitro fertilization, intrauterine insemination, gamete donation, and surrogacy. Today, however, the centrality of kinship to relatedness has been brought back to life, likely influenced by DNA testing. I’ve wondered lately whether this is because understanding ways of relating has come full-circle and we now recognize that while kinship and relatedness can be all-encompassing, the “intrinsic” nature of biology is still fundamental to a person’s identity? As an adult who inadvertently uncovered her misattributed parentage, I would argue that this is absolutely the case.

In Facebook groups for people with not parent expected (NPEs) or misattributed parentage experiences (MPEs), there’s a consistent large difference in the ratio of men to women. If you were a man looking to meet women, this would be a place to be. There’s typically a handful of men and thousands of women. Where are all the guys? Percentage-wise there couldn’t be that many more women than men having DNA surprises. So what’s going on here?

Looking at the bigger picture, this is a fairly common phenomenon among individuals with depression, anxiety, stress, and other mental health concerns. Several studies indicate that men are typically much less likely than women to seek professional help when facing psychological distress. The study authors suggest a number of factors for the disparity, such as the fear many men have of being judged as emotionally vulnerable or weak. Researchers also point to the fact that because men are trained from an early age to compete with other men, it makes them less likely to trust each other and reveal what they may perceive as weakness.

I posed the question to several individuals who not only are behavioral health practitioners but who also have personal experience with misattributed parentage. Their thoughts generally mirror the finding of the studies, but they offered additional insights.

According to Jodi Klugman-Rabb* a licensed marriage and family therapist and licensed professional counselor, “Sometimes it’s as simple as the gender role conditioning specific to cultural norms that men are not manly if emotional.  So expressing emotions is then seen as weak, making group process emasculating.  On a more micro level, emotional process can have a lot to do with the family of origin dynamics and whether kids were allowed or encouraged to explore emotions safely, how cultural gender norms influenced that and to take it back out on a macro level, how these expectations were transmitted intergenerationally.”

Recognizing the challenges facing individuals who experience DNA surprises, Adoption Network Cleveland (ANC) has launched the DNA Discoveries Peer Support Group, a virtual peer support program focused on the emotional impacts of the journey and  It kicks off with a special panel on February 2 facilitated by ANC’s search specialist Traci Onders that will feature an individual who’s discovered misattributed parentage, a donor-conceived person, and adoptees who have found birth family. Onders spoke with us about the program and the personal journey that led her to working with ANC.

How did you come to Adoption Network Cleveland and how did you become interested in this work?

I started as program coordinator for adult adoptees and birthparents in 2016. I’d begun volunteering at Adoption Network Cleveland (ANC) prior to that because its mission was personally important to me. Adoption Network Cleveland advocated for adoptee access to records in Ohio for more than 25 years, and finally in 2013 Ohio passed legislation that opened up original birth certificates to adult adoptees. It’s hard to imagine this would have happened without the steadfast determination of ANC, and as an adoptee, I wanted to give back to the organization that made it possible for me to request and receive my original birth certificate. ANC is a nonprofit organization and has a reputation for advocacy rooted in understanding, support, and education—a meaningful mission to me.

I was born to a woman who was sent to a home for unwed mothers to hide the shame of pregnancy from the small town in which her family lived. There was no counseling available for the grief of relinquishing a child, and she was told to go on with her life and forget about it. These homes no longer exist; we know now how awful and hurtful this practice, rooted in shame, is.

My birthfather died a year later in a tragic accident. He was also an adoptee, raised as a son by his maternal grandparents. I will never know if he knew who his father was, but thanks to DNA, I do.

I first searched for my birthmother more than 20 years ago after my children were born. Pregnancy and childbirth made me want to know more about the woman who carried me and gave me a deep understanding that she made decisions that had to be extremely difficult and painful in a way that I had not previously appreciated. I had complicated pregnancies and no medical history for myself or my children. As a mother, I felt compelled to know and understand more about both my history and my beginning. At that time, I discovered that the agency that handled my adoption, Ohio Children’s Society, had destroyed its records. I had no information at all to work with, and my search hit a brick wall. It was important to me that I connect with my birthmother in a way that was respectful. I didn’t know if she had told anyone she’d relinquished me, and I was concerned that if I hired a private investigator, the PI might use tactics that I wasn’t comfortable with or make a possible secret known to others, and that this somehow might hurt my birthmother or her family. Until I could request my original birth certificate in 2015, I didn’t have many options. In 2015, adoptees were finally able to access their original birth certificates in Ohio, and when I did this, it named my birthmother. I also discovered that I have a maternal half-sister. My birthmother and I reunited very shortly after that. I was finally able to learn her story and to gain a more complete and ongoing medical history. Knowing these things and my relationship with her have been blessings in my life that for many years I did not imagine would be possible. A few months later I met the extended family, and their warm welcome touched my heart.

How does it feel to think you’re related to a monster—and then, decades later, to find out you’re not?

The gossip reaches me on New Year’s Eve, two days after my birthday—worth mentioning only because birthdays often put me in a reflective state that can easily turn to melancholy, and this year is no different. I’m in Mexico City, on vacation, about to go to dinner with my husband, mood beginning to lift. Then I receive the email from my sister.

It reads: “Considering that Mom could pass any day, I thought I should tell you a.s.a.p. in case you don’t know about it, which I assume you don’t.”

The news she shares is second-hand gossip from an old family “friend” who showed up to visit my mother—then dying of brain cancer—to reminisce, burn private letters and relive the good old days. The friend, who played little part in any of our lives for decades, revealed to another family member that my father wasn’t really my father. That person told the sister who emailed me. Now I’m the last in the four-person chain to find out.

As for my mom: she’s not talking, and never will, which isn’t surprising given her love of secrets and lifelong fear of being judged for parenting errors. Her fears are valid. I do judge her, most of all for not keeping my sisters safe when we were all younger.

Before leaving our hotel room to go to dinner, I reply to my sister: “That’s a big surprise! How lucky I don’t feel especially attached to ‘Dad’ or his side of the family or it could be upsetting.”

I take pride in my stoic response and the fact that I severed relations years ago with our late father—an undeniably “bad man.” But that stoicism is really only disorientation. I have no idea, at this time, that my identity and much of what I’d thought about both my parents will have to be recalibrated.

I never would have imagined that my mom, a self-identified, non-practicing Catholic with an affinity for the Virgin Mary, probably had multiple affairs when she was still married to her first husband, who came from a large Sicilian-Polish family. But there was a lot about our family I never suspected until each bomb dropped: for example, when, at age 14, I learned that my two older sisters, then 16 and 19, had been molested for years by the sweet-tempered, funny and charming man we called “Dad.”

Tell us about your own NPE story to the extent you’re comfortable sharing it.

Seeing only 1% French was the red flag in my initial 23andMe DNA report. I was raised to believe I was significantly French and Norwegian. A few months later I took the Ancestry DNA test to compare from the same database that my sister had used. Those results produced the most shocking and traumatic day of my adult life. I had a half brother appear on my DNA results, and I didn’t have a brother as far as I knew. A trip over to my mother’s house an hour later produced more confusion, dismissal, and a host of secrets started to come out. Apparently, my mother and BF worked together in the 80s and had a one-night stand. My mother never told him she got pregnant and never saw him again, or at least that’s what I’ve been told. My mother still claims she didn’t know to this day. I think the most painful part of finding this out is how my mother, birth father, and newfound family have treated me in the aftermath.

How far into your own journey were you when you started your podcast?

Six weeks after I had my DNA shock I published my first trailer for the podcast calling for NPEs to share their story and giving a launch date of July 2019.

What compelled you to start the podcast?

The only comfort I had in those first few weeks of shock was reading other NPE stories on the forums online. I was nodding along with their written stories and scrolling for hours and hours. I would read aloud parts of other NPE stories to my husband at all hours of the day and night. I wanted to be able to listen to these stories as I walked around the house and did my errands. I knew I couldn’t continue to sit in front of a computer the rest of my life but I wanted to bring the comfort of finding others like me everywhere I went. I searched “NPE” on the podcast platforms and at the time did not find anything like it so decided I would produce my own. I realize now I could have used other terms and certainly found other podcasts with these stories on them, but with my limited knowledge at the time I was unable to find other podcasts.

Did you initially find NPEs very willing to speak out, or did you have to coax people to share?

I have only ever asked one guest. My first one I had to search for on reddit; I was too afraid to ask anyone on the DNA sites because I didn’t want to break the rules and get kicked off if they considered it “self-promotion.” After that I’ve had a pretty steady stream of people who reach out. I’m booked for 22 weeks out. I can only handle about one guest a week at this time because I do everything myself including scheduling, recording, and editing. I’m only a hobbyist—I’m literally learning everything as I go.

I believe stories benefit the teller as well as the audience. From your experience sharing people’s stories, can you talk a little about the ways the stories help the listeners, and the ways telling the stories helps the storytellers?

I know every story I record is sacred. Somebody out there is listening and nodding along in relief. A lurker, or perhaps a new NPE bingeing on stories all night long when they can’t sleep from the overwhelming grief they are experiencing. I get emails from listeners saying they have been listening or bingeing all night long to some of these episodes.

As for the storytellers, I wish I could explain the relief, giddiness, and joy I hear in their voices after I sign off. Some of what they tell me afterwards is pure gold, but of course off the record after I’ve stopped recording. They all sound like a weight has been lifted off their shoulders; sometimes they’re exhausted and yawning. I leave every recording session feeling filled with empathy and love for my fellow NPEs.

Why do you think storytelling and sharing is so important for NPEs?

I don’t think most NPEs receive true understanding and empathy from people. We get it. We can empathize with each other’s heartbreak, confusion, anger, and, sometimes, joy. Finding a community has been life-saving for me in this journey.

In one episode you mentioned that you sought therapy after your NPE discovery. Can you talk about how you chose a therapist and whether it was difficult to find someone who understood NPE issues?

Don’ t miss the latest in a series of webinars from Right to Know (RTK), a nonprofit organization that advocates for the rights of MPEs (misattributed parentage experiences), including NPEs (not parent expected).

On Sunday, October 18, from 4pm-5:30 EST, the webinar will address mental health issues experienced by MPEs. Moderated by DrPh candidate Sebastiana Gianci, the panel will include Jodi Klugman-Rabb, LMFT, therapist, cohost of the podcast Sex, Lies & The Truth, and creator of the innovative training program Parental Identity Discovery; Cotey Bowman, LPC Associate, creator of the NPE Counseling Collective, and Lynne Weiner Spencer, RN, MA,LP, a therapist specializing in donor conception, adoption, and the experiences of NPEs and MPEs.

Among the topics to be explored are trauma, identity, grief, ambiguous loss, anxiety, and rejection.

In November, the series’ presenter will be Libby Copeland, award-winning author of The Lost Family: How DNA Testing is Upending Who We Are. (Look for our Q & A with the author here.)

And in December, RTK’s webinar features the DNA Geek Leah Larkin, an adoptee and genetic genealogist. If you’d like to attend the upcoming webinar, request the Zoom link at RSVP2RightToKnow.us, and check out RTK’s event page to stay in the loop about upcoming presentations.

If you missed the last webinar, “Understanding the Medical Ramifications in Your DNA Test,” you can watch the recording.

Right to Know, created by Kara Rubinstein Deyerin, Gregory Loy, and Alesia Cohen Weiss, aims to educate the public and professionals about “the complex intersection of genetic information, identity, and family dynamics.” It works, as well, to change laws with respect to related issues, including fertility fraud. Find it on Facebook and on Twitter and Instagram @righttoknowus.

Tell me a little bit about your background and how you came to be interested in creating DNAngels, and how you educated yourself about genetic genealogy?

18 years ago, my aunt researched our Tippa family roots back to 1804, when these ancestors first sailed to America from Germany. My father surprised me with a beautiful bound book of this research as a gift, along with the story of how our last name was Americanized to Tippy. I loved sharing this history with my brothers, nieces, and nephews, relishing the sense of identity and family unity it brought me. I guess this is where my interest in genealogy really began.

In the Fall of 2017, I decided to create a similar keepsake of family history for my grandchildren as a Christmas gift. I already had an account with Ancestry, and became familiar with using their data to access all types of records, such as birth, death, census, military, and marriage. It occurred to me the Ancestry DNA tests would include specific information regarding the actual regions of one’s ancestors, so I thought this would be a nice addition to include in their family tree book.

Nothing could have prepared me for what happened next.
Six weeks later, my test results arrived. As someone who loves family research, it was exciting to see so many relatives listed from first to fourth cousins! Searching for familiar names on my father’s side, I was confused as not one could be found. I decided to call a few Tippy family members who I knew for certain had also tested. They logged into their Ancestry account but did not see my results either.

In the back of my mind, the distant memory of a comment made by my uncle surfaced. He once told me my daddy could not father children, so none of his kids were biologically his. I brushed the comment off at the time, as my brown eyes were certainly the same as my father’s, making me confident I was his. Suddenly, my world turned upside down as I feared there may be some truth to what my uncle said.

Life changing events such as grief and trauma have a way of changing relationships, too. Discovering surprise DNA  revelations like an adoption not previously disclosed, donor conception, or misattributed or falsified paternity—known as non-paternal events or not parent expected (NPE)—have been shown to have serious effects on family relationships, often pitting families against one another as secrets are uncovered and motives are questioned. The prevalence of commercial DNA testing in the last ten years made possible the revelation of these secrets, contributed to a surge in grief, identity crises, and conflicts within families, Psychotherapy is catching up to this phenomenon, poised to be a source of support and skill building as clinicians gain training on the unique constellation of conditions these discoveries present. However, recently I heard this play out in the worst way imaginable on a podcast I never listen to, but was forwarded by a shocked friend who wondering what my response would be given my own experience and expertise on the subject.

Dr. Laura Schlessinger is a well-known radio personality  for her “no nonsense” style, per her marketing.  She’s been dispensing advice in a sensational manner for decades, touting her ability to save marriages,  but, surprisingly, her professional help is delivered in a style akin to that of Gordon Ramsey or Simon Cowell. The last time I listened to anything from Dr. Laura

Usually, when we think about people opening a Pandora’s box by taking a direct-to-consumer DNA test, we’re thinking about NPEs (not parent expected)—people who learn through such a test that their parent(s) is not genetically related to them. But now donor-conceived (DC) people are wondering if when they test they’re opening a different sort of Pandora’s box.

The decision in a legal case called Teuscher vs NW Cryobank in January 2020 caused some members of the DC community to pause before spitting into that little vial. If you’re considering a test for you DC child (under the age of 18), it’s important for you to know the ruling should not affect your decision.

First, let’s talk about terms. NPE is used here to broadly to include anyone who learns their parent(s) is not their genetic parent(s). This can be due to donor-conception, adoption, a tryst, or an assault. The term DC is used here because it’s the most widely used, even though the term “donor” conceived is very problematic. Most DC people were not conceived by a donation. Assisted reproduction is an industry. People were paid for their sperm or eggs. A better term hasn’t emerged yet. “Donor” disguises the complex issues that arise from creating a human in this fashion. Maybe “dealer conceived” is better if we try to stick with the DC initials.  But I digress.

A short overview of the facts of the Teuscher case: Danielle Teuscher gave birth to a daughter after conceiving with the use of sperm (Donor #2744) purchased from NW Cryobank. She specifically requested an open ID donor so her child at 18 years old could know who her genetic father was. When her daughter was four, Teuscher purchased a direct-to-consumer DNA test with 23andMe to learn about her daughter’s genetic health factors as well as her ethnicity.

If keeping a secret—or being a secret—feels detrimental to your physical or mental health, it’s not your imagination. The expression “toxic secrets” is neither hyperbole nor a figure of speech. Researchers increasingly are learning that secrets place a profound burden on mental and physical health.

It appears it’s not the secret itself, or the act of concealing it in social situations, but rather the psychic energy it requires that contributes to the burden. It’s a pain that plays out in private. Researchers at Columbia University who have been studying the effect of secrets found that the degree to which secrets affect well-being is related to the frequency with which the mind wanders to them, suggesting that it’s the ruminating about secrets that’s damaging. This was true regardless of the significance or importance of the secret. Any secret frequently and turned over and over in the mind, researchers discovered, diminishes wellbeing. The damage is related to the extent to which a person is preoccupied by a secret. In other words, it’s not keeping secrets that hurts, according to Michael Slepian, PHD, lead researcher of the Columbia studies, “it’s having them.”

And what most causes people to obsess about their secrets? In a study called “Shame, Guilt, and Secrets on the Mind,” published in the journal Emotion, Slepian* and his colleagues surveyed 1,000 participants about feelings of shame and guilt associated with their secrets. They also asked survey responders how often they thought about and concealed their secrets each day in the prior month. Perhaps surprisingly, participants spent less time concealing than they did dwelling on their secrets, and it was shame rather than guilt that caused the greatest amount of daydreaming about secrets.

The 1953 discovery of DNA’s double helix and the 2003 completion of the Human Genome Project not only have transformed medicine but also have led to the advent of direct-to-consumer DNA testing, an unforeseen consequence of which has been that many people who test unearth long-buried family secrets.

I’m one of them. When I was an infant, my parents divorced and my mother disappeared without a trace, so I’m well acquainted with the yearning for an unknown parent. I felt abandoned anew when, 50 years later, a test revealed that I’ve never known either of my genetic parents—that my father wasn’t my father. At the same time, I discovered I’m Italian, not Russian; my family was Catholic, not Jewish; and my fear of the cancers rampant in my father’s family was unfounded.

My story—at least the second chapter—isn’t unique. A 2019 PEW Research Center survey found that 27% of home DNA test users discover unknown close relatives. Of these, those whose tests reveal misattributed parentage are known as NPEs—a name referring to the circumstances of conception—a non-paternity event or not-parent-expected.

These surprising results and their ripple effects illustrate what Libby Copeland, in her new book on the subject, The Lost Family, calls the “profound and disruptive power of DNA testing.”

DNA surprises often appear to cause a great deal of emotional upheaval. Would you describe it as traumatic?

Any surprise can be traumatic, but a DNA surprise raises one of life’s most fundamental questions: Who am I? Your very identity is made up of your memories, your shared stories, and experiences with family and friends. When you find out that something is not true, or not exactly true, it is a major shock to your emotional system.

Would it be accurate to say that people experiencing this kind of trauma don’t always recognize it as trauma? Perhaps they think they’re overreacting or are less capable than others of handling things?

It is easy to tell yourself, “This is no big deal. I should be able to handle this.” But “handling something” is a process. And that process may involve feeling upset and expressing various emotions. Like any trauma, the emotional reactions can come in waves and when you least expect them. You and your family members both may minimize your experience by emphasizing you had good parents, you shouldn’t be upset, or even that you’re being selfish by looking for answers. I tell people that I don’t know what qualifies as an overreaction to news that changes your understanding of your world. Your reaction is not a sign of emotional weakness—it’s a sign that you are in touch with reality enough that you react when reality changes. I suggest you accept your reactions, your feelings, as being there. Accept that they are what you need to feel in the moment. There’s no need to try changing them—that doesn’t work anyway. You need to work through the process.

Three NPEs have teamed to form Right to Know (RTK), a nonprofit organization in Washington state to advocate for the rights of NPEs, which it defines broadly as all people directly affected by misattributed parentage, including adoptees, donor-conceived (DC) people, and individuals conceived during an affair, assault, or tryst.

Kara Deyerin, a nonpracticing attorney, Gregory Loy, an active duty Navy human resource manager stationed in Oak Harbor, Washington, and Alesia Weiss, a retired RN and military veteran have outlined and begun to set in motion an aggressive set of initiatives, each based on the fundamental premise—supported by the United Nations Convention on the Rights of the Child—that everyone has the right to know one’s genetic identity.
RTK, says Deyerin, has a two-pronged mission, the first and foremost of which is education—both for the public and NPEs. The organization wants to illuminate the public about what it means to be an NPE and what NPEs experience. It aims to give them a realistic picture of who NPEs are and engender understanding about the complexities of the intersection of genetic information, identity, and family dynamics. At the same time, it seeks to educate NPEs about the emotional and legal issues that may arise in the wake of a DNA surprise and help provide solutions.

When—after learning that the man she believed to be her father was not genetically related—Deyerin investigated her rights as an NPE. She was shocked to realize that she had none. That discovery drove the second part of RTK’s mission: to advocate for NPEs’ rights so that they will have what they need to heal and move forward.

The first step in setting this mission in motion is securing the funds to kickstart its initiatives, so Deyerin, Loy, and Weiss are in the process of seeking grant monies.

Facebook groups and virtual support groups can be lifesavers, but nothing beats face-to-face time with people who know how you feel and have been where you’ve been. That’s why Erin Cosentino and Cindy McQuay have begun organizing retreats for adoptees, late discovery adoptees, donor conceived people, and NPEs (not parent expected) at which participants can get to know each other and share their experiences in a relaxed setting while learning from experts about the issues that challenge them. It’s not therapy, but it may be equally healing, and undoubtedly more fun.

Since the day that Cosentino, 44, discovered at 42 that her father was not the man who raised her, her mantra has been “Nothing has changed, yet everything has changed.” McQuay, 56, has known her entire life she had been adopted. Both married with children and busy schedules, each devotes considerable time to advocating for people with concerns related to genetic identity and helping searchers look for biological family. And each runs a private Facebook group, Cosentino’s NPE Only: After the Discovery, and McQuay’s Adoptees Only: Found/Reunion The Next Chapter.

Among her advocacy efforts, McQuay, who describes herself as a jack of all trades, helps adoptees locate the forms necessary to obtain original birth certificates (OBCs). A strong voice for adoptee rights, she strives to enlighten non-adoptees about the often unrecognized harsh realities of adoption, helping them understand that “not all adoptions are rainbows and unicorns.” Countering the dominant narrative, she’s quick to point out that adoptees “were not chosen, we were just next in line.”

As the new network television season begins this week, adoptees, NPEs (not parent expected or non-parental events), and donor conceived individuals are among the casts of characters on primetime programs. But will the series’ writers and producers bring a level of reality and depth to the depictions or simply exploit their experiences for dramatic purposes without accuracy, nuance, and sensitivity?
On October 2, the first show with a high-concept premise about donor conception premieres on Fox. The plot of “Almost Family” unfolds as it becomes known that renowned fertility doctor Leon Bechley boosted his clinic’s success rate by using his own sperm to help clients conceive—a practice that led to the conception of dozens of children.

While it would appear to be a plot line ripped from recent headlines, the show is based on the Australian Network 10 series “Sisters,” which premiered in October 2017 and may have been inspired by an earlier headline concerning an Indiana fertility doctor who in 2016 was sued for using his own sperm more than 50 times to inseminate patients. The show began streaming as a Netflix Original Series in September 2018.
As in “Sisters,” “Almost Family” focuses on the effect this bombshell has on Bechley’s daughter, Julia, and two women who discover that they were conceived from his sperm. One, Edie Palmer, has been a longtime friend of Julia. The other is a former Olympic athlete, Roxy Doyle.

Both shows purport to be about the redefinition of family and the issues that surface as these sisters face the facts of their conception, navigate the challenges, and encounter an ever-increasing number of siblings.

“Sisters,” with 7 episodes, begins promisingly enough. Dialogue suggests that feelings, experiences, and concerns arising from the characters’ discovery that they not only were donor conceived but conceived with the sperm of a fertility doctor will be on point.