Surprise! I’m Your Sister.

By B.K. Jackson

The 1953 discovery of DNA’s double helix and the 2003 completion of the Human Genome Project not only have transformed medicine but also have led to the advent of direct-to-consumer DNA testing, an unforeseen consequence of which has been that many people who test unearth long-buried family secrets.

I’m one of them. When I was an infant, my parents divorced and my mother disappeared without a trace, so I’m well acquainted with the yearning for an unknown parent. I felt abandoned anew when, 50 years later, a test revealed that I’ve never known either of my genetic parents—that my father wasn’t my father. At the same time, I discovered I’m Italian, not Russian; my family was Catholic, not Jewish; and my fear of the cancers rampant in my father’s family was unfounded.

My story—at least the second chapter—isn’t unique. A 2019 PEW Research Center survey found that 27% of home DNA test users discover unknown close relatives. Of these, those whose tests reveal misattributed parentage are known as NPEs—a name referring to the circumstances of conception—a non-paternity event or not-parent-expected.

These surprising results and their ripple effects illustrate what Libby Copeland, in her new book on the subject, The Lost Family, calls the “profound and disruptive power of DNA testing.”

Devastated to learn they have no genetic connection to their kin, many NPEs, like adoptees, become desperate to identify and contact their biological families. Some are welcomed into the fold, while others are ignored or spurned. Some, shockingly, are rejected even by the families in which they were raised.

This NPE experience, often hidden in the dark and shrouded in silence, must be brought into the light and made the subject of conversation. Why is this important? Because we can extrapolate from adoption research that identity confusion, stress, and rejection can render NPEs, like adoptees, vulnerable to potentially severe emotional turmoil and increased risks for depression, addiction, and other behavioral health issues. Discussion will bring much-needed attention to the dearth of resources and trained professionals needed to help them cope. And further, because with greater public awareness of the emotional impact, families—rather than close the door on NPEs—might be better able to respond empathetically and, thus, mitigate trauma.

When we receive unexpected DNA results, boughs of our family trees break. Our heritage evaporates. We’re not who we thought we were and we don’t know where we come from. We grieve for the families we may never know, yet this grief goes unacknowledged, as if it isn’t legitimate.

Like adoptees, we may suffer from genealogical bewilderment, a condition described in 1952 by psychiatrist E. Wellish as the alienation resulting from being disconnected from biological relatives. A relationship to one’s genealogy, he said, is “an inalienable and entitled right of every person.” The right to know one’s parents is also recognized as fundamental by the United Nations Convention on the Rights of the Child. 

And yet, about our new DNA status we’re routinely asked: What difference does it make?

That roughly 30 million people have taken DNA tests to discover their heritage and millions more are obsessed with genealogy is proof that people care—deeply—about where they come from. If blood ties didn’t matter, parents would take home a random infant from the nursery; instead they choose the newborn who carries their genes. But NPEs are expected not to care about DNA.

Adding to the trauma of shattered identity may be the pain of rejection. Because most NPEs are born of affairs or donor conceptions, when they reach out to biological family members they may expose long-guarded secrets and repressed shame. Fathers may reject their offspring for fear they’ll expose their infidelities or donor status, and siblings may want nothing to do with children conceived under these circumstances. But NPEs didn’t choose how they came into the world.

It’s true that people on the other end of this experience—those approached out of the blue by strangers—may also feel blindsided. It’s understandable, but is it an excuse to deprive people of their birthright?

It raises a fundamental question about whose rights are paramount and what responsibilities come with creating a human being. Are individuals entitled to secrecy when secret keeping affects the wellbeing of others and denies their truth? When paternity is established at birth, fathers are morally and legally responsible for their children; to reject such responsibility is actionable and considered contemptible. But the passage of time gives men a pass to pretend their children don’t exist.

Before DNA tests became available, I discovered and was welcomed by six brothers and sisters—my mother’s children. When later, through a DNA test, I discovered I was an NPE, it took an agonizing 18 months to discover who my biological father was and learn he’d been survived by a son. I wrote to this half-brother, asking only if he’d share a photograph of our father, tell me about him, and advise me about any preventable risks for heritable diseases. This is all most NPEs want.

To some degree, I understand my brother’s disinterest and failure to reply. Unlike me, he had nothing at stake. Yet I wonder what it would have cost him to respond—how he could have been unmoved by my request. I find it hard to believe a grown man might be so disturbed by his father’s unfaithfulness that he’d reject a sister. Perhaps, like many, he erroneously believes DNA results are unreliable. But the science behind DNA testing is unassailable. And since I enclosed a photograph of myself, he couldn’t have failed to see an unmistakable resemblance. I know that likeness exists because I was lucky enough to find cousins willing to give me what my brother would not. Their eager embrace and kindliness were healing and lifechanging. Thanks to them, I saw a photograph of my father—my own face looking back at me. These cousins could have shut the door on me; instead they gave me the gift of my own truth.

It’s possible that the ball on what Copeland calls “the roulette wheel of some unexpected revelation” may land on you or someone close to you. If an unknown relative contacts you or your family, consider that if you’ve seen your father’s face, you can’t imagine what it means to her to never have had that opportunity. Consider, too, that she’s not responsible for the circumstances of her conception and is without shame or blame. Ask yourself, if the tables were turned, wouldn’t you feel as if you’d been sucker-punched? If you learned you had a father whose name and face you didn’t know, wouldn’t you want to find him? If your religion was no longer your religion and your ethnicity no longer what you believed it to be, wouldn’t you feel adrift? If happened to you, wouldn’t you hope your biological family would respond with empathy and grace?

This isn’t to say you owe her a relationship. But the only decent, compassionate response is to acknowledge your genetic connection and provide a medical history. It’s the least a human being should expect from a blood relative. Understand that DNA matters to her, as it does to everyone else.

B.K. Jackson

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