Recognizing the challenges facing individuals who experience DNA surprises, Adoption Network Cleveland (ANC) has launched the DNA Discoveries Peer Support Group, a virtual peer support program focused on the emotional impacts of the journey and It kicks off with a special panel on February 2 facilitated by ANC’s search specialist Traci Onders that will feature an individual who’s discovered misattributed parentage, a donor-conceived person, and adoptees who have found birth family. Onders spoke with us about the program and the personal journey that led her to working with ANC. How did you come to Adoption Network Cleveland and how did you become interested in this work? I started as program coordinator for adult adoptees and birthparents in 2016. I’d begun volunteering at Adoption Network Cleveland (ANC) prior to that because its mission was personally important to me. Adoption Network Cleveland advocated for adoptee access to records in Ohio for more than 25 years, and finally in 2013 Ohio passed legislation that opened up original birth certificates to adult adoptees. It’s hard to imagine this would have happened without the steadfast determination of ANC, and as an adoptee, I wanted to give back to the organization that made it possible for me to request and receive my original birth certificate. ANC is a nonprofit organization and has a reputation for advocacy rooted in understanding, support, and education—a meaningful mission to me. I was born to a woman who was sent to a home for unwed mothers to hide the shame of pregnancy from the small town in which her family lived. There was no counseling available for the grief of relinquishing a child, and she was told to go on with her life and forget about it. These homes no longer exist; we know now how awful and hurtful this practice, rooted in shame, is. My birthfather died a year later in a tragic accident. He was also an adoptee, raised as a son by his maternal grandparents. I will never know if he knew who his father was, but thanks to DNA, I do. I first searched for my birthmother more than 20 years ago after my children were born. Pregnancy and childbirth made me want to know more about the woman who carried me and gave me a deep understanding that she made decisions that had to be extremely difficult and painful in a way that I had not previously appreciated. I had complicated pregnancies and no medical history for myself or my children. As a mother, I felt compelled to know and understand more about both my history and my beginning. At that time, I discovered that the agency that handled my adoption, Ohio Children’s Society, had destroyed its records. I had no information at all to work with, and my search hit a brick wall. It was important to me that I connect with my birthmother in a way that was respectful. I didn’t know if she had told anyone she’d relinquished me, and I was concerned that if I hired a private investigator, the PI might use tactics that I wasn’t comfortable with or make a possible secret known to others, and that this somehow might hurt my birthmother or her family. Until I could request my original birth certificate in 2015, I didn’t have many options. In 2015, adoptees were finally able to access their original birth certificates in Ohio, and when I did this, it named my birthmother. I also discovered that I have a maternal half-sister. My birthmother and I reunited very shortly after that. I was finally able to learn her story and to gain a more complete and ongoing medical history. Knowing these things and my relationship with her have been blessings in my life that for many years I did not imagine would be possible. A few months later I met the extended family, and their warm welcome touched my heart.
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How does it feel to think you’re related to a monster—and then, decades later, to find out you’re not? The gossip reaches me on New Year’s Eve, two days after my birthday—worth mentioning only because birthdays often put me in a reflective state that can easily turn to melancholy, and this year is no different. I’m in Mexico City, on vacation, about to go to dinner with my husband, mood beginning to lift. Then I receive the email from my sister. It reads: “Considering that Mom could pass any day, I thought I should tell you a.s.a.p. in case you don’t know about it, which I assume you don’t.” The news she shares is second-hand gossip from an old family “friend” who showed up to visit my mother—then dying of brain cancer—to reminisce, burn private letters and relive the good old days. The friend, who played little part in any of our lives for decades, revealed to another family member that my father wasn’t really my father. That person told the sister who emailed me. Now I’m the last in the four-person chain to find out. As for my mom: she’s not talking, and never will, which isn’t surprising given her love of secrets and lifelong fear of being judged for parenting errors. Her fears are valid. I do judge her, most of all for not keeping my sisters safe when we were all younger. Before leaving our hotel room to go to dinner, I reply to my sister: “That’s a big surprise! How lucky I don’t feel especially attached to ‘Dad’ or his side of the family or it could be upsetting.” I take pride in my stoic response and the fact that I severed relations years ago with our late father—an undeniably “bad man.” But that stoicism is really only disorientation. I have no idea, at this time, that my identity and much of what I’d thought about both my parents will have to be recalibrated. I never would have imagined that my mom, a self-identified, non-practicing Catholic with an affinity for the Virgin Mary, probably had multiple affairs when she was still married to her first husband, who came from a large Sicilian-Polish family. But there was a lot about our family I never suspected until each bomb dropped: for example, when, at age 14, I learned that my two older sisters, then 16 and 19, had been molested for years by the sweet-tempered, funny and charming man we called “Dad.”
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ArticlesDNA & Genetic GenealogyDNA SurprisesSearch & Reunion
Q & A With Investigator Christina Bryan
by bkjaxChristina Bryan has an impressive portfolio of skills that make her exceedingly good at her work as a genetic and family investigator, but it’s her tenacity that drives her success where others may fail. Based in Marin County, California, she helps clients across the country cope with life-altering DNA test results and shocking family surprises, untangling misattributed parentage discoveries and locating their biological family members. Whether working with adoptees, donor-conceived adults, or others who’ve had a misattributed parentage experience (MPE), she employs an array of investigative strategies and doesn’t stop until she’s solved a client’s puzzle. A Portland, Oregon native, Bryan moved to the Bay area to go to California State University, East Bay, where she earned a bachelor’s degree in sociology and became a performance analyst in the investment banking field. But after she took an autosomal DNA test in 2014, she found herself on a new career trajectory. She learned about the science of DNA, applied it to her own family tree, and began using her newfound skills to help others solve the puzzle of their parentage or better understand their ancestry. It quickly became apparent it wasn’t merely a hobby; it was a calling, as the nickname her clients have given her suggests—Super Sleuth. In 2016, she began taking on complex cases for high profile clients and performing international and historical research. She’s in demand not only for her persistence but also for her intuition, which has helped her solve cases for attorneys and law enforcement personnel. She’s also co-host, with Jodi Klugman-Rabb, of Sex, Lies & the Truth, an entertaining and informative podcast about DNA surprises. Bryan knows her job doesn’t begin and end with solving a case. She’s likely to encounter clients experiencing stress, trauma, identity confusion, and intense emotions related to their change of status within their family and she offers comfort, humor, and emotional support. Here she talks with us about her work.
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During these tumultuous and uncertain times, we’re all looking for the courage and inspiration to keep on keeping on. Many of us are exploring our identities and looking for clues and connections to our past, present, and futures stories. These stories can touch us, move us, and make us feel a little better, often deepening our connections to the people around us. We all have a primal need for belonging, and these connections are built around our stories. Many of us are turning to 23andMe.com, Ancestry.com, FamilySearch.org, and other web sites to discover family legacy stories, hoping to find a deeper sense of identity and the answers to profound identity questions: “What makes us who we are?” “To whom am I biologically related?” “Who am I?” But sometimes digging into the family tree unearths pieces of a bigger story than the one you might have envisioned. The good news is that experts say knowing the truth, even if it feels harsh or hard to accept at first, can be healing. In some cases, it can give us a sense of empathy and greater connection to others when we realize we are all human; sometimes we find ourselves making decisions that have a ripple effect for generations to come. In her book Inheritance: A Memoir of Genealogy, Paternity, and Love, author Dani Shapiro says: “When we tell the secret that we feel sets us so completely apart from everyone else, we discover that it doesn’t and that to connect with others is valuable and powerful.” Carole Hines has experienced firsthand how learning the truth can answer questions that have nagged her throughout her life. She always knew she was somehow different than her siblings, but it was not until she got the results of her DNA test that she knew why. All her life, she says, she never understood racism or prejudice. When a DNA test revealed the San Francisco resident did not share the 99% of European descent of her two siblings—that she did not have the same biological father and she was mostly Latina—she began a journey of deeper understanding into racial divides.
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In a few weeks, it will be the 30th anniversary of my becoming a U.S. citizen. Even now, I can’t begin to tell you exactly what was required or how long it took. My adoptive parents successfully navigated that process for me when I was just a child, several years after my adoption from South Korea. We celebrated as a family afterward, but I didn’t understand what it all meant at the time. Today, I see more clearly how that piece of paper has shaped my life and what I have been allowed to take for granted. As a citizen, I have been able to vote in elections year after year my entire adult life. I have been able to work, get a U.S. passport, and receive federal financial aid. I have not lived in fear of deportation. Other transnational adoptees have not been as fortunate. In many cases, the steps required for naturalization were not clearly communicated by the government or adoption agencies to adoptive parents. Today, it is estimated that thousands of adults who were adopted as children lack U.S. citizenship. These adoptees fall into a loophole from the Child Citizenship Act (CCA) that was signed into law in 2001. The CCA granted citizenship to many adoptees who were still minors at the time of enactment but excluded others, including adult adoptees born before 1983. The bipartisan Adoptee Citizenship Act of 2019, which would close much of the loophole, has been sponsored by Congressman Adam Smith of Washington and introduced in Congress, where it awaits committee action and a floor vote in the House. This legislation would grant citizenship to more than 50 deported adoptees and other adoptees without citizenship who are still in the U.S. It would also provide the citizenship that all intercountry adoptees are entitled to as the children of U.S. citizens, end the unequal treatment between adopted and biological children of U.S. citizens, and allow deported adoptees to come home, reunite with their families, and rebuild their lives. Due to the widespread erasure of adoptee voices, many people’s understanding of adoption comes largely from the perspective of adoption agencies and adoptive parents. This mainstream, mostly positive narrative frames adoption around “families” and “love.” In contrast, for many adoptees, the experience is more complicated and often traumatic. These feelings can be acute and front of mind. In other cases, these traumas linger in the background, shaping how we perceive our place in the world: in our families, friendships, and sense of belonging. They can resurface without warning. Even though I have been struggling with my own Korean American identity and adoptee experience, I was largely ignorant of the issue of adoptee citizenship. While I have supported other immigration measures in the past, I did not learn of the Adoptee Citizenship Act until earlier this year. Finally, I read and heard more stories of deported adoptees who’ve been forced to confront this other form of separation. As I’ve tried to learn more, I’ve come to better appreciate how U.S. policy falls far short. After all, many of our fellow Americans—both adoptees and other immigrants—cannot fully participate in U.S. life, even though this may be the only country they have known. I believe issues of families and belonging are always paramount, and our current crises have only magnified this urgency. During this pandemic, we all probably know families who are struggling with forced time apart. Holidays, birthdays, and major life milestones are conducted via Zoom or FaceTime. For adoptees who have been deported, the uncertainty of not knowing when they will next see their loved ones has been the reality since even before COVID-19. Without the Adoptee Citizenship Act, deported adoptees will remain in unfamiliar countries, separated from their families and friends, and uprooted from their homes. For those who lack access to economic relief from their country of origin or from the U.S., where can they turn? When it comes to addressing policy failures that span years, we cannot completely atone for the injustices of the past. All we can do is act. With the bill expiring on December 10, it’s up to all of us to come together and demand our elected representatives in Congress pass the Adoptee Citizenship Act and finally provide internationally adopted Americans with the citizenship we were promised.
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Tell us about your own NPE story to the extent you’re comfortable sharing it. Seeing only 1% French was the red flag in my initial 23andMe DNA report. I was raised to believe I was significantly French and Norwegian. A few months later I took the Ancestry DNA test to compare from the same database that my sister had used. Those results produced the most shocking and traumatic day of my adult life. I had a half brother appear on my DNA results, and I didn’t have a brother as far as I knew. A trip over to my mother’s house an hour later produced more confusion, dismissal, and a host of secrets started to come out. Apparently, my mother and BF worked together in the 80s and had a one-night stand. My mother never told him she got pregnant and never saw him again, or at least that’s what I’ve been told. My mother still claims she didn’t know to this day. I think the most painful part of finding this out is how my mother, birth father, and newfound family have treated me in the aftermath. How far into your own journey were you when you started your podcast? Six weeks after I had my DNA shock I published my first trailer for the podcast calling for NPEs to share their story and giving a launch date of July 2019. What compelled you to start the podcast? The only comfort I had in those first few weeks of shock was reading other NPE stories on the forums online. I was nodding along with their written stories and scrolling for hours and hours. I would read aloud parts of other NPE stories to my husband at all hours of the day and night. I wanted to be able to listen to these stories as I walked around the house and did my errands. I knew I couldn’t continue to sit in front of a computer the rest of my life but I wanted to bring the comfort of finding others like me everywhere I went. I searched “NPE” on the podcast platforms and at the time did not find anything like it so decided I would produce my own. I realize now I could have used other terms and certainly found other podcasts with these stories on them, but with my limited knowledge at the time I was unable to find other podcasts. Did you initially find NPEs very willing to speak out, or did you have to coax people to share? I have only ever asked one guest. My first one I had to search for on reddit; I was too afraid to ask anyone on the DNA sites because I didn’t want to break the rules and get kicked off if they considered it “self-promotion.” After that I’ve had a pretty steady stream of people who reach out. I’m booked for 22 weeks out. I can only handle about one guest a week at this time because I do everything myself including scheduling, recording, and editing. I’m only a hobbyist—I’m literally learning everything as I go. I believe stories benefit the teller as well as the audience. From your experience sharing people’s stories, can you talk a little about the ways the stories help the listeners, and the ways telling the stories helps the storytellers? I know every story I record is sacred. Somebody out there is listening and nodding along in relief. A lurker, or perhaps a new NPE bingeing on stories all night long when they can’t sleep from the overwhelming grief they are experiencing. I get emails from listeners saying they have been listening or bingeing all night long to some of these episodes. As for the storytellers, I wish I could explain the relief, giddiness, and joy I hear in their voices after I sign off. Some of what they tell me afterwards is pure gold, but of course off the record after I’ve stopped recording. They all sound like a weight has been lifted off their shoulders; sometimes they’re exhausted and yawning. I leave every recording session feeling filled with empathy and love for my fellow NPEs. Why do you think storytelling and sharing is so important for NPEs? I don’t think most NPEs receive true understanding and empathy from people. We get it. We can empathize with each other’s heartbreak, confusion, anger, and, sometimes, joy. Finding a community has been life-saving for me in this journey. In one episode you mentioned that you sought therapy after your NPE discovery. Can you talk about how you chose a therapist and whether it was difficult to find someone who understood NPE issues?
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A common mistake adoptive parents make when hearing adult adoptees speak about adoption trauma is discounting their experiences because “times have changed” or their adoptee hasn’t voiced similar feelings. Some parents will straight-up ask their adopted children if they feel the same way and then rest easy when their children deny having similar feelings. Differing details of adoption stories can be used as evidence of irrelevance. Adoptee voices that land as “angry” are often quickly written off as “examples of a bad adoption.” “Not my adoptee,” is a knee-jerk, defensive response that blinds parents to adoption-related dynamics that may be uncomfortable or painful to consider—especially when everything seems to be going swimmingly in early childhood. This posture, though, discounts the real and proven trauma inherent in adoption, missing an opportunity to fully support adopted children and ultimately benefit from closer, more authentic relationships. That trauma looks good on you. One reason it’s so easy to miss signs of adoption trauma is because it can present so well. Adoptees are unintentionally groomed to be people-pleasers. Once we’ve lost our first mothers to adoption, we can work incredibly hard to win the love of our next mothers. We strive to measure up—doing and saying whatever is needed to keep our adoptive mothers close. This is all unconscious and certainly not meant to be fraudulent. To our brains, running the show, it’s simply a matter of survival. Children need parents, after all, and attachment is our greatest human need, taking priority even over such basics as shelter and food, as explained by child developmental psychologist Dr. Gordon Neufeld.
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Don’ t miss the latest in a series of webinars from Right to Know (RTK), a nonprofit organization that advocates for the rights of MPEs (misattributed parentage experiences), including NPEs (not parent expected). On Sunday, October 18, from 4pm-5:30 EST, the webinar will address mental health issues experienced by MPEs. Moderated by DrPh candidate Sebastiana Gianci, the panel will include Jodi Klugman-Rabb, LMFT, therapist, cohost of the podcast Sex, Lies & The Truth, and creator of the innovative training program Parental Identity Discovery; Cotey Bowman, LPC Associate, creator of the NPE Counseling Collective, and Lynne Weiner Spencer, RN, MA,LP, a therapist specializing in donor conception, adoption, and the experiences of NPEs and MPEs. Among the topics to be explored are trauma, identity, grief, ambiguous loss, anxiety, and rejection. In November, the series’ presenter will be Libby Copeland, award-winning author of The Lost Family: How DNA Testing is Upending Who We Are. (Look for our Q & A with the author here.) And in December, RTK’s webinar features the DNA Geek Leah Larkin, an adoptee and genetic genealogist. If you’d like to attend the upcoming webinar, request the Zoom link at RSVP2RightToKnow.us, and check out RTK’s event page to stay in the loop about upcoming presentations. If you missed the last webinar, “Understanding the Medical Ramifications in Your DNA Test,” you can watch the recording. Right to Know, created by Kara Rubinstein Deyerin, Gregory Loy, and Alesia Cohen Weiss, aims to educate the public and professionals about “the complex intersection of genetic information, identity, and family dynamics.” It works, as well, to change laws with respect to related issues, including fertility fraud. Find it on Facebook and on Twitter and Instagram @righttoknowus.
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How long did you spend researching and writing The Lost Family? Altogether, about three years. I first wrote about Alice Collins Plebuch’s fascinating genetic detective story in The Washington Post in early 2017. The response to that story, which was hundreds of emails from other consumers sharing intimate and moving DNA testing stories, convinced me the topic needed to be a book, and I started researching for the proposal soon afterward. But the bulk of the work was done during 2018 and 2019. In The Lost Family, I revisit Alice’s story and tell it much more fully. I was able to travel to Washington State and spend time with her, as well as do historical research going back a hundred years to illuminate her family’s astonishing story. And as I follow her story, I also tell many other tales from people I Interviewed—wrenching, moving stories of how this technology is changing how we see ourselves and how we talk to one another, not to mention how we think about truth and the past. What so intrigued you initially that you were willing to devote so much time and attention to this issue? Did you realize early on how complex the subject would be? I was really intrigued by the idea that questions about genetic origins and family could lead individuals, families, and the culture at large to deep explorations of essential human questions about identity, what makes a family, and how we define ethnicity. The science was indeed quite complex, and so were the experiences of people affected by this technology. I got to interview a lot of genetic genealogists about their techniques and the history of the field, and to tour a DNA testing lab and speak with a number of scientists and historians about human genetics and autosomal DNA testing.
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ArticlesDNA & Genetic GenealogyDNA SurprisesNPEsSearch & Reunion
A Q&A With DNAngels’ Laura Leslie
by bkjaxTell me a little bit about your background and how you came to be interested in creating DNAngels, and how you educated yourself about genetic genealogy? 18 years ago, my aunt researched our Tippa family roots back to 1804, when these ancestors first sailed to America from Germany. My father surprised me with a beautiful bound book of this research as a gift, along with the story of how our last name was Americanized to Tippy. I loved sharing this history with my brothers, nieces, and nephews, relishing the sense of identity and family unity it brought me. I guess this is where my interest in genealogy really began. In the Fall of 2017, I decided to create a similar keepsake of family history for my grandchildren as a Christmas gift. I already had an account with Ancestry, and became familiar with using their data to access all types of records, such as birth, death, census, military, and marriage. It occurred to me the Ancestry DNA tests would include specific information regarding the actual regions of one’s ancestors, so I thought this would be a nice addition to include in their family tree book. Nothing could have prepared me for what happened next. Six weeks later, my test results arrived. As someone who loves family research, it was exciting to see so many relatives listed from first to fourth cousins! Searching for familiar names on my father’s side, I was confused as not one could be found. I decided to call a few Tippy family members who I knew for certain had also tested. They logged into their Ancestry account but did not see my results either. In the back of my mind, the distant memory of a comment made by my uncle surfaced. He once told me my daddy could not father children, so none of his kids were biologically his. I brushed the comment off at the time, as my brown eyes were certainly the same as my father’s, making me confident I was his. Suddenly, my world turned upside down as I feared there may be some truth to what my uncle said.
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Life changing events such as grief and trauma have a way of changing relationships, too. Discovering surprise DNA revelations like an adoption not previously disclosed, donor conception, or misattributed or falsified paternity—known as non-paternal events or not parent expected (NPE)—have been shown to have serious effects on family relationships, often pitting families against one another as secrets are uncovered and motives are questioned. The prevalence of commercial DNA testing in the last ten years made possible the revelation of these secrets, contributed to a surge in grief, identity crises, and conflicts within families, Psychotherapy is catching up to this phenomenon, poised to be a source of support and skill building as clinicians gain training on the unique constellation of conditions these discoveries present. However, recently I heard this play out in the worst way imaginable on a podcast I never listen to, but was forwarded by a shocked friend who wondering what my response would be given my own experience and expertise on the subject. Dr. Laura Schlessinger is a well-known radio personality for her “no nonsense” style, per her marketing. She’s been dispensing advice in a sensational manner for decades, touting her ability to save marriages, but, surprisingly, her professional help is delivered in a style akin to that of Gordon Ramsey or Simon Cowell. The last time I listened to anything from Dr. Laura
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Usually, when we think about people opening a Pandora’s box by taking a direct-to-consumer DNA test, we’re thinking about NPEs (not parent expected)—people who learn through such a test that their parent(s) is not genetically related to them. But now donor-conceived (DC) people are wondering if when they test they’re opening a different sort of Pandora’s box. The decision in a legal case called Teuscher vs NW Cryobank in January 2020 caused some members of the DC community to pause before spitting into that little vial. If you’re considering a test for you DC child (under the age of 18), it’s important for you to know the ruling should not affect your decision. First, let’s talk about terms. NPE is used here to broadly to include anyone who learns their parent(s) is not their genetic parent(s). This can be due to donor-conception, adoption, a tryst, or an assault. The term DC is used here because it’s the most widely used, even though the term “donor” conceived is very problematic. Most DC people were not conceived by a donation. Assisted reproduction is an industry. People were paid for their sperm or eggs. A better term hasn’t emerged yet. “Donor” disguises the complex issues that arise from creating a human in this fashion. Maybe “dealer conceived” is better if we try to stick with the DC initials. But I digress. A short overview of the facts of the Teuscher case: Danielle Teuscher gave birth to a daughter after conceiving with the use of sperm (Donor #2744) purchased from NW Cryobank. She specifically requested an open ID donor so her child at 18 years old could know who her genetic father was. When her daughter was four, Teuscher purchased a direct-to-consumer DNA test with 23andMe to learn about her daughter’s genetic health factors as well as her ethnicity.
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ArticlesDNA & Genetic GenealogyDNA SurprisesSearch & Reunion
A Q&A With Julie Dixon Jackson
by bkjaxTell us little about yourself apart from your adoption journey and your podcast/genetic genealogy work? I am a wife and mother of two. I’m currently on my fifth career. I made my living as an actress/singer for most of my life. That slowed down in my forties, so, needing a creative outlet, I went to beauty school and got a cosmetology license. I’ve always been a genealogy hobbyist, but the advent of direct-to-consumer DNA testing changed my world and heralded a whole new skill set. And the impossible question: Can you summarize your own adoption journey? Always knew I was adopted and was always implicitly aware of the general mismatch between me and my adoptive family. To be clear, that doesn’t mean I didn’t love and appreciate them. It means I spent my life feeling like I was “other” than those around me, and it was emphasized by the general consensus that I should try harder to blend in and not be my own person. I found my biological mother in my early twenties and it was quite uneventful and stress free. My parents were supportive of this effort and even reached out to my biological mother in solidarity. Years later, after having my own children, I realized I needed to complete my search and began an arduous and often shocking journey into identifying my paternal family. It became an obsession. As has always been my way, if those around me told me that something was impossible, I leaned in to prove otherwise. Being hypervigilant is a common thread among adoptees and it has pretty much dominated my motivations in life. (For the full story, please listen to the first 20 or so episodes of my podcast “CutOff Genes.” Caveat: Genetic genealogy is relatively new and always evolving, and the testing sites update their platforms regularly. That said, some of the earlier episodes may contain content that’s no longer relevant.)
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ArticlesDNA SurprisesFamily SecretsNPEs
It’s Not A Figure of Speech: Secrets Really Are Toxic
by bkjaxIf keeping a secret—or being a secret—feels detrimental to your physical or mental health, it’s not your imagination. The expression “toxic secrets” is neither hyperbole nor a figure of speech. Researchers increasingly are learning that secrets place a profound burden on mental and physical health. It appears it’s not the secret itself, or the act of concealing it in social situations, but rather the psychic energy it requires that contributes to the burden. It’s a pain that plays out in private. Researchers at Columbia University who have been studying the effect of secrets found that the degree to which secrets affect well-being is related to the frequency with which the mind wanders to them, suggesting that it’s the ruminating about secrets that’s damaging. This was true regardless of the significance or importance of the secret. Any secret frequently and turned over and over in the mind, researchers discovered, diminishes wellbeing. The damage is related to the extent to which a person is preoccupied by a secret. In other words, it’s not keeping secrets that hurts, according to Michael Slepian, PHD, lead researcher of the Columbia studies, “it’s having them.” And what most causes people to obsess about their secrets? In a study called “Shame, Guilt, and Secrets on the Mind,” published in the journal Emotion, Slepian* and his colleagues surveyed 1,000 participants about feelings of shame and guilt associated with their secrets. They also asked survey responders how often they thought about and concealed their secrets each day in the prior month. Perhaps surprisingly, participants spent less time concealing than they did dwelling on their secrets, and it was shame rather than guilt that caused the greatest amount of daydreaming about secrets.
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The 1953 discovery of DNA’s double helix and the 2003 completion of the Human Genome Project not only have transformed medicine but also have led to the advent of direct-to-consumer DNA testing, an unforeseen consequence of which has been that many people who test unearth long-buried family secrets. I’m one of them. When I was an infant, my parents divorced and my mother disappeared without a trace, so I’m well acquainted with the yearning for an unknown parent. I felt abandoned anew when, 50 years later, a test revealed that I’ve never known either of my genetic parents—that my father wasn’t my father. At the same time, I discovered I’m Italian, not Russian; my family was Catholic, not Jewish; and my fear of the cancers rampant in my father’s family was unfounded. My story—at least the second chapter—isn’t unique. A 2019 PEW Research Center survey found that 27% of home DNA test users discover unknown close relatives. Of these, those whose tests reveal misattributed parentage are known as NPEs—a name referring to the circumstances of conception—a non-paternity event or not-parent-expected. These surprising results and their ripple effects illustrate what Libby Copeland, in her new book on the subject, The Lost Family, calls the “profound and disruptive power of DNA testing.”
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DNA surprises often appear to cause a great deal of emotional upheaval. Would you describe it as traumatic? Any surprise can be traumatic, but a DNA surprise raises one of life’s most fundamental questions: Who am I? Your very identity is made up of your memories, your shared stories, and experiences with family and friends. When you find out that something is not true, or not exactly true, it is a major shock to your emotional system. Would it be accurate to say that people experiencing this kind of trauma don’t always recognize it as trauma? Perhaps they think they’re overreacting or are less capable than others of handling things? It is easy to tell yourself, “This is no big deal. I should be able to handle this.” But “handling something” is a process. And that process may involve feeling upset and expressing various emotions. Like any trauma, the emotional reactions can come in waves and when you least expect them. You and your family members both may minimize your experience by emphasizing you had good parents, you shouldn’t be upset, or even that you’re being selfish by looking for answers. I tell people that I don’t know what qualifies as an overreaction to news that changes your understanding of your world. Your reaction is not a sign of emotional weakness—it’s a sign that you are in touch with reality enough that you react when reality changes. I suggest you accept your reactions, your feelings, as being there. Accept that they are what you need to feel in the moment. There’s no need to try changing them—that doesn’t work anyway. You need to work through the process.
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In 2013, Danielle Teuscher, of Portland, Oregon, gave birth to a daughter, Zoe, who’d been conceived with sperm donated by an “Open ID” donor—a donor who’s open to contact when his donor-conceived offspring turn 18 years of age. Teuscher acquired the sperm from NW Cryobank, a Spokane, Washington sperm bank. Like other children conceived through donor sperm, Zoe not only lacked information about her ethnicity and ancestry, but she also lacked complete access to half of her medical history. In hopes of learning more about Zoe’s heritage and any health risks she might face, Teuscher ordered a direct-to-consumer DNA test from 23andMe for her daughter. She had not attempted or intended to learn the identity of the donor, but when the results came in, there was apparently a close match on 23andMe who was willing to be contacted by matches. Teuscher sent a simple message through the 23andMe website indicating that the match’s son may be her child’s donor and that she, too, was receptive to contact. The match was puzzled, so Teuscher apologized and moved on. But the matter didn’t end there. Soon she received a cease and desist letter from NW Cryobank threatening her with a $20,000 legal action for two breaches of a clause in an electronic agreement—one, having given her daughter a DNA test, and the other having contacted the donor’s mother. The letter warned her not to contact the donor or make attempts to discover his identity or background. Further, the sperm bank informed Teuscher that it had rescinded her access to four vials (she has five vials) of gametes that she’d paid for so that she might one day have another child who would be a genetic match to Zoe.
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Three NPEs have teamed to form Right to Know (RTK), a nonprofit organization in Washington state to advocate for the rights of NPEs, which it defines broadly as all people directly affected by misattributed parentage, including adoptees, donor-conceived (DC) people, and individuals conceived during an affair, assault, or tryst. Kara Deyerin, a nonpracticing attorney, Gregory Loy, an active duty Navy human resource manager stationed in Oak Harbor, Washington, and Alesia Weiss, a retired RN and military veteran have outlined and begun to set in motion an aggressive set of initiatives, each based on the fundamental premise—supported by the United Nations Convention on the Rights of the Child—that everyone has the right to know one’s genetic identity. RTK, says Deyerin, has a two-pronged mission, the first and foremost of which is education—both for the public and NPEs. The organization wants to illuminate the public about what it means to be an NPE and what NPEs experience. It aims to give them a realistic picture of who NPEs are and engender understanding about the complexities of the intersection of genetic information, identity, and family dynamics. At the same time, it seeks to educate NPEs about the emotional and legal issues that may arise in the wake of a DNA surprise and help provide solutions. When—after learning that the man she believed to be her father was not genetically related—Deyerin investigated her rights as an NPE. She was shocked to realize that she had none. That discovery drove the second part of RTK’s mission: to advocate for NPEs’ rights so that they will have what they need to heal and move forward. The first step in setting this mission in motion is securing the funds to kickstart its initiatives, so Deyerin, Loy, and Weiss are in the process of seeking grant monies.
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In only a year, Blake Gibbins’ YouTube channel “Not Your Orphan” has garnered an enthusiast base of subscribers who tune in for the host’s thoughtful, engaging, and provocative videos about a range of adoption issues from adoptee infantilization to genetic sexual attraction. Gibbins, a queer domestic adoptee and adoptee rights advocate, lives in Colorado and is deep into a self-designed graduate program in child welfare history and contemporary adoptee rights from Vermont’s Goddard College. “Not Your Orphan,” Gibbins explains, is for “adoptees and allies and all who wish to understand.” And unlike so many conversations about adoption in which adoptee voices are nowhere to be found, “Not Your Orphan” is a place, they say, “where we talk everything adoption from the perspective of those who actually live it.” Whether focused on how to be a better ally, cognitive dissonance and its place in the discourse on adoption, the gross inequities in the adoption system, or the trauma of family separation, the videos are informative, illuminating, and even—despite the seriousness of the subject matter—amusing. With an easy conversational style and a guileless gaze that connects with the viewer, Gibbins add a surprising intimacy and even the illusion of interactivity to these videos. This disarming presence, combined with deft editing and creative effects, glides viewers through what Gibbins acknowledges are sometimes uncomfortable conversations. As host, Gibbins is both entertainer and the best kind of teacher, sharing deep knowledge of the history, workings, and abuses of the foster and adoption industry along with welcome dashes of humor and irony and a heap of social justice perspective. These videos, however, are informed not only by historical perspective but, and equally important, also by his lived experience. They’re clear and direct, and variously raw, vulnerable, angry, whimsical, and passionate.
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Facebook groups and virtual support groups can be lifesavers, but nothing beats face-to-face time with people who know how you feel and have been where you’ve been. That’s why Erin Cosentino and Cindy McQuay have begun organizing retreats for adoptees, late discovery adoptees, donor conceived people, and NPEs (not parent expected) at which participants can get to know each other and share their experiences in a relaxed setting while learning from experts about the issues that challenge them. It’s not therapy, but it may be equally healing, and undoubtedly more fun. Since the day that Cosentino, 44, discovered at 42 that her father was not the man who raised her, her mantra has been “Nothing has changed, yet everything has changed.” McQuay, 56, has known her entire life she had been adopted. Both married with children and busy schedules, each devotes considerable time to advocating for people with concerns related to genetic identity and helping searchers look for biological family. And each runs a private Facebook group, Cosentino’s NPE Only: After the Discovery, and McQuay’s Adoptees Only: Found/Reunion The Next Chapter. Among her advocacy efforts, McQuay, who describes herself as a jack of all trades, helps adoptees locate the forms necessary to obtain original birth certificates (OBCs). A strong voice for adoptee rights, she strives to enlighten non-adoptees about the often unrecognized harsh realities of adoption, helping them understand that “not all adoptions are rainbows and unicorns.” Countering the dominant narrative, she’s quick to point out that adoptees “were not chosen, we were just next in line.”