Update: The study has closed and is no longer actively recruiting participants.
April 2023
-
By Caitlin Jiao Alexander
She will come to me as a ghost, which is unfortunate, but it is the only way. I will be compelled to glance up and I will see a woman who looks more like me than anyone else I know. She will stand a few yards away, wearing something simple, un-patterned. Her hair will be gray or black, her eyes will be dark and sad. Even if she were to smile (and most ghosts don’t smile), they will still be a little sad. She will have a narrow forehead with a smooth hairline, like mine, and full lips, like mine. If she speaks, she will say a name. I will not recognize her words as a name, but I will recognize her in the same way that one recognizes somebody in a dream: with feeling and certainty, not with logic. She will flicker like a dying lamp and then disappear.
***
When there’s so much you don’t know about yourself, fantasy blooms into your mind like weeds in an empty lot. Harmless, pretty, and just as susceptible to death as they are to growth. The stories, worlds, and characters constructed by young adoptees are called “the ghost kingdom” by Betty Jean Lifton, adoptee activist and psychologist. An adopted person’s imagination stretches to fill infinite unanswered questions. Who was my mother? What did she do? What about my father? What kind of life did they have? How do I fit into that lost legacy? The adoptee creates her own narratives. She uses half-redacted clues, or information passed from agency to adoptive parent, or pure speculation to populate her ghost kingdom.
As a child, my imagination would place me in the role of an alien, a descendant of royalty, even a clone. I was eleven years old, fantasizing about my figurative letter from Hogwarts, my superhero origin story. I read a children’s book series called Replica about a girl who begins to experience strange abilities, leading her to discover that she is a clone. She has a crescent-shaped birthmark on her shoulder; I have a splotch-shaped birthmark on my back. She was adopted but didn’t know; I am adopted and have always known.
“Isn’t it weird how I have that birthmark?” I asked my mom. “In the book I’m reading, the clone girl has a birthmark, too.”
“That doesn’t make you a clone, sweetie,” she responded in the loving yet dismissive way of a parent.
“It would be cool if I were, though,” I mumbled.
“No,” she said, “it wouldn’t.”
Why wasn’t it fun for her to imagine that I could be a cloned government experiment? It was fun for me. I didn’t want to be a sad, ordinary adopted person. I wanted to be special. I wanted a more interesting story than the one I was living.
Orphans and adoptees are tropes as old as storytelling itself: Moses, Superman, Annie, Harry Potter, Luke Skywalker, etc. Adoptees are living mysteries, quests-waiting-to-happen, puzzles with a heartbeat. The questions of our lives make for good backstory and motivation. The potential for lies and betrayal make for good plot twists. Our journeys from isolation to reunion make classic plots. But, of course, real life is not like the stories.
Click on image to read more.
-
By Hannah Andrews
“It’s one of the best profiles I’ve ever seen,” she says.
Well swipe right I think, but it’s not that type of profile.
I’m Zooming my super-fancy genetic scientist doctor. I’d think her a total genius, except for the fact that she keeps forgetting I’m adopted. She’s just asked me, for the third time in as many appointments, about my medical history.
“No history,” I remind her, “I’m adopted.”
On my first appointment, (the one before the one where they took seemingly unending vials of fasting bloodwork and finally gave me an anti-anxiety pill so I could get through the claustrophobic MRI), I wrote DOES NOT APPLY on my intake form. All caps. I added (adopted)—lowercase and parenthetically. It’s second nature, though it has evolved. I used to write it in teensy letters as if whispering an apology for myself—adopted. Over the years, my words got bigger and messier. By my thirties, I’d scrawl ADOPTED kitty-corner across the entire form.
But, I’ve matured.
On my best days, I make polite suggestions, “Perhaps you could add a box to the form—one that says Adopted or Unknown Parentage?”
This is not one of my best days, but I hold my tongue and we Zoom along. “You’re one of my healthiest patients in years,” she says and hits “share screen.” My monitor fills with the data of me–whole genome sequencing, blood-based biomarkers, bone and muscle analysis. She chirps through my results as if she created me—Dr. Frankenstein to my monster, and I must admit, it’s fascinating. I am riveted to the screen as I watch my mystery movie finally unfurl.
“There’s one anomaly,” she continues. “ You’re a carrier for…” and she turns into Charlie Brown’s teacher, wah-wahing her way through a bunch of words I don’t know. The gist of it—I’m a carrier of something, but it’s only dangerous if my reproductive partner is also a carrier.
I tell her, for at least the second time, that I’m 53 and childless.
Click the image to read more.
-
By Gwen Lee
I settled into the chair, ready for the stylist to begin my long-overdue haircut. I’ve found that there are varying degrees of chattiness among stylists. While I tend to be fairly quiet, if the person who’s going to hold me captive in their chair for the next hour or so starts an interesting conversation, I’ll gladly participate.
Salon chair conversations are usually innocuous enough. On this particular day, the conversation took a different turn. The stylist, Sophia, launched into a story about how she was angry with her ex-husband because he was trying to convince her daughter that she was not his biological daughter. There was a matter of the daughter’s hair coloring (that had to be how we got on this topic) not matching the ex-husband’s color. Sophia was considering having her daughter take a DNA test to prove that her ex-husband was indeed her daughter’s biological father.
I didn’t, and would never, interfere in anyone else’s family drama, especially that of a virtual stranger. Otherwise, I might have been inclined to tell her to tread carefully. Warning bells starting going off and red lights started flashing in my head. It had been about a year since I’d learned I was an NPE (not parent expected).
My discovery that the man whose name was on my birth certificate was not actually my biological father came, like so many others, after I took an Ancestry DNA test in 2017, purely out of curiosity about my ethnicity. When I started looking at DNA matches, I noticed a lot of names I recognized as maternal relatives. I didn’t know a lot about my dad’s family. He and my mother had divorced when I was 5 years old. He moved across country, and I’d only had a handful of visits with him since. But I knew enough to know that I didn’t see anyone from his family on my list of matches. There were also a lot of names I didn’t recognize at all. It didn’t take me very long to figure out what had occurred. It didn’t seem impossible to me. After all, years ago, my sister discovered she was an NPE. That was before Ancestry DNA tests. Someone gave her a hint and she used the services of a private detective, who also happened to be our brother, to find her biological father. After researching, talking to some cousins on my paternal side, and using the services of a search angel, I was able to determine who my bio father was. I then asked one of his daughters to test on Ancestry. The result confirmed she was my half-sister.
By the time I made my discovery, my mother and my bio father had both passed away. Consequently, I’m left with many unanswered questions. I’ve come to accept that there are many details around my conception that I will never know.
I wrestled with the decision about whether I should talk to my birth certificate father about this situation. That brings me to one of the dilemmas faced by many NPEs at some point after the world turns itself back upright again after they make their discoveries. To whom are they going to tell their stories?
We all have to make decisions about whom we can trust with our stories. It’s not really a matter of comfort, because I doubt that many of us feel “comfortable” telling our stories to anyone. It’s not a situation that engenders comfort. But I know from listening to many NPE stories that many of us do tell someone, and often we feel better for having shared.
There is no NPE Discoveries for Dummies manual. We’re left on our own to decide how to handle these matters, and telling or not telling is a decision that we have to make on our own. Even for those NPEs who are lucky enough to have therapists or counselors helping them navigate their journeys, and while there are likely some professional opinions, I believe it has to be the decision of the NPE.
So many circumstances go into the decision about whether NPEs will share their stories with someone else, and they are all very personal. We talk about how there a few basic premises behind NPE discoveries—the things that put us all in the same boat. Yet, everyone’s story has many individual aspects. It’s the same with the tell-or-don’t-tell decision. Everyone has very personal issues that cause them to grapple with this decision.
Decisions range from I’m not telling anyone because it’s no one’s business but mine to I’m very open about it—I even told the grocery store clerk. Many decisions fall somewhere between the two. The vibe I got from Sophia, my stylist, is that she’d be one of the more open story tellers.
Many NPEs tell some, but not all, family members and a few select friends. Some tell most of the family, leaving only a few relatives in the dark. Based on my own decision-making processes and on other NPE stories I have heard, there are a variety of motivations behind some of these decisions.
Click image to read more.
-
-